Walking With Giants Foundation
Supporting Individuals and Families Affected By Microcephalic Primordial Dwarfism

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Our Aims

The Foundation aims to provide support for individuals affected by Primordial Dwarfism, their parents/carers, siblings and the general public.

We will strive to achieve the following aims for individuals affected by Primordial Dwarfism:

Facilitate Opportunities to Meet

Including but not limited to the following:

  • Assisting individuals and their families affected by Primordial Dwarfism with annual membership costs for joining the numerous associations associated with Dwarfism (i.e. Restricted Growth Association, Child Growth Foundation, Little People of America).
  • Assisting individuals and their families affected by Primordial Dwarfism with travel and accommodation expenses to the numerous annual conventions (i.e. Restricted Growth Association, Child Growth Foundation Little People of America and Walking With Giants).
  • Assisting individuals and their families affected by Primordial Dwarfism with travel and accommodation expenses to a quarterly Walking With Giants Family Support Weekend.
  • Provide family retreats exclusive to individuals and their families affected by Primordial Dwarfism.

Provide for Adaptive and Medical needs 

Including but not limited to the following:

  • Assistance for family medical and dental expense outside of the coverage of NHS provisions and services.
  • Assistance with expenses for adaptive equipment needed for the home, vehicle, or school outside of NHS provisions, services and State benefits.
  • Assistance with travel, accommodation and medical expenses for medical care outside of the UK (if necessary).

Facilitate Education and Awareness

Including but not limited to the following:

  • Provide support and education to families of individuals with Primordial Dwarfism.
  • Provide education literature to schools, the general public and mankind.
  • Provide education to Hospitals and Medical Institutes.

Research and Physician Support

Research

The Foundation will strive to facilitate research to:

  • Promote, encourage or undertake organised research into matters related to Primordial Dwarfism; and to disseminate such research anywhere in the world.

Physician Support

The Foundation will strive to facilitate a Medical Advisory Board to:

  • Review any individual deemed to be affected by Primordial Dwarfism.
  • Liaise with the Local National Health Trusts so that an individual diagnosed with Primordial Dwarfism obtains the right support and treatment.

WWGF Family Support

WWGF TV