We attended the first ever WWG convention in October 2008, over the years we have attended several Little People of America conferences and to finally have one in this country for MOPD children is a dream come true.
Sadly this came to late for our daughter Jemma, she passed away in 2005, aged 21.
It is so important for these children and their families to spend time together, for a lot of families travelling to America to attend the LPA event (Little People of America) is too expensive, we were lucky enough to take Jemma several times but had to make the extremely difficult decision to leave half our family behind.
With a convention in this country hopefully the MOPD families will not have to make that decision.
To watch these children meet others like themselves for the first time, to be able to run around and have fun without the fear of being picked up, knocked over or ridiculed is something all children have a right to.
Young adults can sit side by side at a bar, parents and siblings can share their hopes, their fears and their dreams. Jemma had to wait 19 years before she had the chance to meet and talk to another person like herself.
The other important thing about these conventions is that it enables the people with MOPD to meet specialists from all over the world, who have a vast knowledge of the condition who can investigate and give advice on some of the very serious medical issues. Most doctors in the UK have never heard of or had any experience with MOPD.
We are all looking forward to attending the next convention and are excited about what the WWG foundation is doing and can hopefully continue to do in the future.
Mark & Tina (Jemma's Parents) - England - January 2009