Walking With Giants Foundation
Supporting Individuals and Families Affected By Microcephalic Primordial Dwarfism

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WWGF Family Support Feedback

Thank You So Much!

Hi my name is Terry and my partner's name is Sammy we are mum and dad to three year old Lucy Johnson. Lucy has Primordial Dwarfism and her special organisation is called the Walking With Giants Foundation. We as a family have everything to thank the WWGF for as they help us in many many ways.

From the first day we made contact with its founders Sue and John Connerty they have showed us great support with Lucy and her condition. The Foundation arranged meetings with many other families whose children have the same conditions as well as bringing specialist doctors to the UK for meetings which answered some very important questions for me and mum. Them things alone mean the world to us and is all thanks to the WWGF.

If it wasn't for them we would literally feel alone, as the conditions the kids suffer with is so rare there isn't a great deal regular doctors or family's can help you with. Only the people at the WWGF can give you the support and answers we felt we needed and for that we will be forever grateful.

Lucy has come on in leaps and bounds in the last year or so, and we cannot wait for the next convention which is arranged once yearly by Sue and John and many people behind the scenes working all year round doing fund raisers and raising awareness for PD .

Sammy and I feel like we have a second family just down the road or a phone call or email away. If we have a problem or a question we can't answer, the WWGF usually has the answers and we will be eternally grateful to them for their help and support thanks so much Lucy and family.

Terry (Lucy's Dad) - England - 2013

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