Walking With Giants Foundation
Supporting Individuals and Families Affected By Microcephalic Primordial Dwarfism

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WWGF Family Support Feedback

Critical Times 2

I wanted to say thank you to Walking with Giants Foundation and their supporters.

My son Nicholas has MOPDII. Last February (2010) during a routine follow up doctor's appointment abnormal blood work came back, sending us to a kidney specialist. It was scary enough facing the new medical concern but what followed, we were not prepared for.

During this appointment, we also discovered Nicholas had high blood pressure and was given medication to treat it and was also told that he needed a MRA scan. Just as Nicholas came out of the MRA, I was contacted by our Pediatrician and was told that they had found 2 brain aneurysms that would need repaired.

We knew of a doctor in Sanford, California that had done this procedure before on other primordial children and felt this was the best option but live in Georgia. My concerns for travel expenses and how I would continue to pay my bills from the weeks off from work were a great concern. The surgery had to be done soon to save his life. I knew this could have financially devastated me. However the WWGF was there with the help we needed to get to Dr Steinberg were he was able to repair not 2 but 3 aneurysms.

I am glad to say that One year later, Nick has made a full recovery and we are so blessed to have him still here with us today. Not enough words can say Thank you to WWGF and their supporters from me, my family.

Shelly and Nicholas Smith - USA - February 2011

 

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