Walking With Giants Foundation
Supporting Individuals and Families Affected By Microcephalic Primordial Dwarfism

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WWGF Family Support Profiles

Within this page you will find information on some of the families and their children who are supported by the WWGF. It includes their personal experiences and some general feedback about the support given to them by the WWGF.

By providing this information it allows new families whose child has just been diagnosed as having a form of Primordial Dwarfism a first hand understanding of what it's like living with Primordial Dwarfism. From the earliest days and through the years ahead. It also shows them that they are not alone and there is a network of families out there to help and befriend them.

Additionally it allows our supporters and the general public to understand how crucial an organisation like the WWGF is and what the support means to the families.

Permission has been granted from the parents and individuals to use the information and pictures within this area of the WWGF website.

Avery

Avery was born at 38 weeks in February 2009. She weighed 4lbs and had a head circumference of 24cm. The doctors knew before her birth that she was small and had severe microcephaly. Her head was so small they weren't even sure she had a fully formed brain.

Charlotte

Charlotte was born on the 19th August 2007 by emergency cesarean section weighing 1 lbs 11 ozs and a month early, she was about 8 inches in length. We couldn't believe how small she was. I had seen pictures of premature babies before.....

Hope

Our daughter Hope was born on the 1st September 2009, after 9 long months of doctors telling us how hopeless it was for her survival, as she was so small in the womb. She would either most probably die .....

Jemma

Jemma was born on the 4th of June 1984 weighing 3lb half an ounce and 40cm tall, no one seemed to know why she was so small. She was only 10 days early, had lots of black hair, perfect and healthy.

Kenadie

It was only about 12 hours from the time we found out there was a problem with my pregnancy and the time Kenadie was born. A small kitten meow was all I heard before she was whisked away to be cared for. Kenadie was born just about 37 weeks.

Rima

Rima was transferred to the Queens Medical Centre (QMC) in Nottingham and put under the care of Mr. Punt who was a specialist neurological surgeon. He diagnosed Rima with having a very rare condition called Moyamoya syndrome in 1999...

Matthew

It all started when I was 20 weeks along in my second pregnancy. I had a uneventful first pregnancy, a healthy baby girl, Jessica. But, when we went into the ultrasound for my second one to find out what we were having, the doctor noticed that he wasn't....

Michael

Michael James was born full term weighing 4 lbs 3 oz. My pregnancy was perfectly normal just like MJ s older sister who is a healthy 5 year old. At birth MJs size shocked us all and he spent his first few weeks in special care where....

Nailah

Nailah Shah my second child was born by emergency caesarean section and was 6 weeks premature. I went to Whipps Cross hospital for a routine check-up and within the hour Nailah was born and was immediately rushed off to SCBU....