About XRCC IV
To Be Updated
How common is XRCC IV?
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What causes XRCC IV?
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Is XRCC IV inherited?
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What gene is associated with XRCC IV?
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How is a diagnosis made?
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What are the physical characteristics?
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What are the associated medical problems?
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What are things to watch out for?
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What are the best care practices?
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Persons perspective
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Parents perspective
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Research/Clinical papers available
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Disclaimer
Please note the information on this page does not replace individual medical advice or provides a diagnosis. If any parent or guardian visiting this site thinks their child has a form of Microcephalic Primordial Dwarfism, they should consult a local Clinical Geneticist or ask their local pediatrician/doctor to make a referral to one of our doctors on our medical review board.
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Frequently Asked Questions:
I think our child has Microcephalic Primordial Dwarfism. Can you help us?
Yes we can! All you need to do is send an email to Sue Connerty at sue.connerty@walkingwithgiants.org and she will get back to you via email asking some information about your child. On receipt of your reply, she will the assess the information and consult with doctors on our Medical Advisory Board. If all information corresponds with the criteria needed for the WWGF to your child and your family, The WWGF will then send you some information how to regisiter for support and unite with other families affected by Microcephalic Primordial Dwarifism.
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If you would like your donation to be recognised please let us know by:
Calling us 0151 526 0134 (from within the UK),
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Email us on enquiries@walkingwithgiants.org,
or by writing to us at, Walking With Giants Foundation, PO Box 85, Maghull, Liverpool, L31 6WW.